Virtual 8th Annual Young Women’s Breast Health Day on the Hill
April 28, 2022 @ 11:00 am - 3:00 pm EDT
At Tigerlily’s 8th Annual Young Women’s Breast Health Day on the Hill, we will facilitate conversations with Members of Congress, staffers, advocates, patients, healthcare providers, national/local healthcare leaders, media, and community activists about survivorship care plans. It is our mission to advance partnerships, tools, content, messages, and methods to increase access to survivorship care plans. Together, let’s mobilize a network of diverse advocates and experts to champion survivorship studies and programs across Federal agencies to engage in a coordinated effort to improve the health and quality of life of survivors.
Advocating to advance education and access to survivorship care plans for health care providers and all patients.
BACKGROUND
Tigerlily Foundation’s Young Women’s Breast Health Day on the Hill (YWBHD) was first held in 2009 to create additional advocacy and awareness about the issues young breast cancer survivors faced and the work of Tigerlily. This event amplified Tigerlily Foundation’s collaboration with Rep. Debbie Wasserman Schultz writing the draft bill of the Breast Cancer Education and Awareness Requires Learning Young (EARLY) Act which was later signed by the Congresswoman in 2010. Annually, Tigerlily mobilizes advocates to advance breast health equity priorities.
ON SURVIVORSHIP CARE PLANS
A cancer survivor is any individual with a history of cancer, from the time of diagnosis through the rest of their life.
Approximately 17 million Americans are cancer survivors – by 2030, there will be approximately 22 million.
Survivors face difficult physical, emotional, psychosocial, and neurological challenges that persist beyond diagnosis and the start of treatment, arising months and years after cancer treatment.
BIPOC survivors have a significantly lower health-related quality of life measures compared to white counterparts.
Survivorship care is the medical care of an individual who has completed their treatment for cancer or of an individual who is undergoing maintenance treatment for cancer.
Clinicians, researchers, and insurers have limited agreement on services and the point survivorship care begins.
Cancer survivors, and their providers, face many difficulties understanding and coordinating the transition between primary and specialty care, and for this reason communication and treatment is often disjointed and infrequent.
To avoid additional health-related or financial hardships to cancer survivors and their families, comprehensive and forward-thinking cancer survivorship studies and programs across Federal agencies are needed to engage in a coordinated effort to improve the health and quality of life of survivors.
SPEAKERS
Debbie Wasserman Schultz has dedicated her public life to serving South Floridians and standing up for justice, equality, and opportunity wherever and whenever it is threatened. As Florida’s first Jewish Congresswoman, she has earned the respect of her colleagues for working tirelessly on behalf of seniors, children, and families for nearly three decades.
First sworn in to the U.S. House of Representatives in 2005, Congresswoman Wasserman Schultz previously served in the Florida House of Representatives and Florida Senate where she originally displayed her philosophy that there is “no task too small, and no goal too big.”
As a mother of three, Congresswoman Wasserman Schultz has worked to prioritize the safety and security of our nation’s youth. She authored the first federal pool and spa safety legislation –the Virginia Graeme Baker Pool and Spa Safety Act. Since its passage in 2007, there have been no drain entrapment deaths in any public pools in the United States. That same year, she sponsored the PROTECT Our Children Act, which created the largest law enforcement effort ever formed for the protection of our nation’s youth.
After announcing her own battle with breast cancer in 2009, Wasserman Schultz introduced the EARLY Act, a piece of legislation designed to increase breast cancer education and awareness. The EARLY Act became law as part of the Affordable Care Act, signed by President Barack Obama in 2010. Wasserman Schultz also worked with Republican Congresswoman Renee Elmers to write and pass the PALS Act, which helps increase young women’s access to mammograms.
In the 117th Congress, Wasserman Schultzserves on the Committee on Oversight and Reform (COR), which has vast jurisdiction over the government and private sectorandplaysa key roleinensuringaccountability from all aspects of our government. She also chairs the Military Construction and Veterans Affairs Appropriations’Subcommittee, where she is committed to ensuring our nation’s veterans have the resources and support they need.
As Chief Deputy Whip of the Democratic Caucus, Congresswoman Wasserman Schultz has the unique ability to work with and help lead her colleagues in support of a progressive policy agenda. She has been a tireless defender of Social Security and Medicare and is strongly committed to expanding access to quality and affordable health care, preventing senseless tragedies of gun violence, and defending the fundamental idea that all Americans have the right to be treated equally under the law.
Congresswoman Wasserman Schultz attended the University of Florida where she served as president of the Student Senate and graduated with a Bachelor’s Degree in Political Science in 1988 and a Master’s Degree in 1990. She has been married to Steve Schultz for more than 20 years and together they have three children.
Wasserman Schultz has said that representing the people of Florida’s 23rd district is the greatest privilege of her professional life. A proud South Floridian who represents parts of Broward and Miami-Dade counties, Congresswoman Wasserman Schultz resides with her family in Weston.
Maimah Karmo is the Founder/CEO of the Tigerlily Foundation (Tigerlily) and a sixteen-year survivor of breast cancer. On February 28, 2006, at 4:45 p.m., Maimah was diagnosed with Stage 2 breast cancer. She had no family history and was 32-years old. While undergoing her second round of chemotherapy, she made a promise to God that if she survived, she would create an organization to educate, empower, advocate for and support young women affected by breast cancer. After her second treatment, Tigerlily Foundation was born.
Tigerlily provides breast health, educational, empowerment wellness and transformational programs to young women. After working with Congresswoman Debbie Wasserman Schultz to develop the Breast Cancer Education and Awareness Requires Learning Young (EARLY) Act, in October 2011, Maimah was appointed to the Federal Advisory Committee on Breast Cancer in Young Women, a committee established by the Affordable Care Act, on which she works to develop initiatives to increase knowledge of breast health and breast cancer, for women under the age of 45 and those at heightened risk for developing the disease. She is a speaker and media personality, regularly called upon to speak on Capitol Hill and other venues, as a health, advocacy and empowerment expert.
In 2015, Maimah advocated with Members of Congress to ensure that young women had access to breast screening. Tigerlily Foundation flew young women to Washington, D.C. to meet with 74 members of Congress. The visit resulted in doubling the House and Senate support for the Protecting Access to Lifesaving Screening (PALS) legislation. The bill was signed into law within a month, protecting the lives and rights of millions of women. She is a leader in the women’s health field, creating and implementing national health initiatives for women and girls, with a goal of eliminating disparities of age, stage and color. Under Maimah’s leadership, Tigerlily Foundation has launched national and global health initiatives focused on ending disparities, through the #InclusionPledge, partnering with global stakeholders, with a call to action to recognize health disparities as a social justice issue; and working to end disparities for Black women in our lifetime.
Maimah has appeared in USA Today, U.S. News and World Report, Black Enterprise, Oprah Magazine, Essence Magazine, Ladies Home Journal, Cosmopolitan, Seventeen, Good Housekeeping, Harper’s Bazaar, Marie Claire, Redbook, Women and Cancer, Cure Magazine, Traditional Home Magazine and more. She has also been featured on Fox 5, ABC 7, CBS, the Oprah Winfrey Show, OWN, Good Morning America, the Today Show and more. She is a sought-after speaker by the media and for policy events; and she is a philanthropist.
In 2010, Maimah published Fearless: Awakening to my Life’s Purpose Through Breast Cancer. In 2018, she published the “Badass Girl’s Book of Prayers”. She recently published Divine Downloads: Transforming through Trauma, followed by Unicorn Boss, in June 2020. You can find Maimah on Twitter @maimah, on Instagram @maimah and on Facebook @maimahkarmoofficial.
At Tigerlily’s 8th Annual Young Women’s Breast Health Day on the Hill, we will facilitate conversations with Members of Congress, staffers, advocates, patients, healthcare providers, national/local healthcare leaders, media, and community activists about survivorship care plans. It is our mission to advance partnerships, tools, content, messages, and methods to increase access to survivorship care plans. Together, let’s mobilize a network of diverse advocates and experts to champion survivorship studies and programs across Federal agencies to engage in a coordinated effort to improve the health and quality of life of survivors.
PURPOSE
Advocating to advance education and access to survivorship care plans for health care providers and all patients.
BACKGROUND
Tigerlily Foundation’s Young Women’s Breast Health Day on the Hill (YWBHD) was first held in 2009 to create additional advocacy and awareness about the issues young breast cancer survivors faced and the work of Tigerlily. This event amplified Tigerlily Foundation’s collaboration with Rep. Debbie Wasserman Schultz writing the draft bill of the Breast Cancer Education and Awareness Requires Learning Young (EARLY) Act which was later signed by the Congresswoman in 2010. Annually, Tigerlily mobilizes advocates to advance breast health equity priorities.
ON SURVIVORSHIP CARE PLANS
SPEAKERS
Tigerlily provides breast health, educational, empowerment wellness and transformational programs to young women. After working with Congresswoman Debbie Wasserman Schultz to develop the Breast Cancer Education and Awareness Requires Learning Young (EARLY) Act, in October 2011, Maimah was appointed to the Federal Advisory Committee on Breast Cancer in Young Women, a committee established by the Affordable Care Act, on which she works to develop initiatives to increase knowledge of breast health and breast cancer, for women under the age of 45 and those at heightened risk for developing the disease. She is a speaker and media personality, regularly called upon to speak on Capitol Hill and other venues, as a health, advocacy and empowerment expert.
In 2015, Maimah advocated with Members of Congress to ensure that young women had access to breast screening. Tigerlily Foundation flew young women to Washington, D.C. to meet with 74 members of Congress. The visit resulted in doubling the House and Senate support for the Protecting Access to Lifesaving Screening (PALS) legislation. The bill was signed into law within a month, protecting the lives and rights of millions of women. She is a leader in the women’s health field, creating and implementing national health initiatives for women and girls, with a goal of eliminating disparities of age, stage and color. Under Maimah’s leadership, Tigerlily Foundation has launched national and global health initiatives focused on ending disparities, through the #InclusionPledge, partnering with global stakeholders, with a call to action to recognize health disparities as a social justice issue; and working to end disparities for Black women in our lifetime.
Maimah has appeared in USA Today, U.S. News and World Report, Black Enterprise, Oprah Magazine, Essence Magazine, Ladies Home Journal, Cosmopolitan, Seventeen, Good Housekeeping, Harper’s Bazaar, Marie Claire, Redbook, Women and Cancer, Cure Magazine, Traditional Home Magazine and more. She has also been featured on Fox 5, ABC 7, CBS, the Oprah Winfrey Show, OWN, Good Morning America, the Today Show and more. She is a sought-after speaker by the media and for policy events; and she is a philanthropist.
In 2010, Maimah published Fearless: Awakening to my Life’s Purpose Through Breast Cancer. In 2018, she published the “Badass Girl’s Book of Prayers”. She recently published Divine Downloads: Transforming through Trauma, followed by Unicorn Boss, in June 2020. You can find Maimah on Twitter @maimah, on Instagram @maimah and on Facebook @maimahkarmoofficial.
CONTACT
Contact info@tigerlilyfoundation.org to learn more, Sponsor, or volunteer as a Patient Advocate.
Together, let’s create #APlan4All.
OUR PARTNERS & SUPPORTERS
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