Tigerlily Foundation’s BREATHE Tv is a sacred space, an educational and inspirational breast cancer lifestyle web series that brings together patients, providers and loved ones in a space of purpose, while engaging in authentic and meaningful conversations about cancer.
SEASON TWO
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Episode 8: Young Women’s Health
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In this episode, we hear from two women both impacted by cancer at a young age as a previvor and early-stage breast cancer thriver. Both women needed to be proactive, learning how to be their own best advocate and navigate the medical system while transitioning to becoming an adult.
Cancer and breast cancer can impact you as a teenager or young adult. Brittany had the instincts and intuition to act quickly when she detected a lump on her left breast. Hear how she navigated the medical system, the emotional trauma and was able to transform and blossom into a confident, happy advocate and young adult.
Maysa is a previvor who made educated decisions about her health and how to be her own best advocate. She credits genetic testing and proven research in helping her to understand her risks of being a BRCA1 carrier, taking action, being proactive, and empowering her to become the strong, confident woman she is today.
Host:
Maimah Karmo | 15 Year Breast Cancer Thriver
Guests:
- ANGEL Advocate – Brittany Gregory
- Bright Pink – Maysa Clay
Takeaway:
Download the Emotional Stages of Cancer: Finding Your Voice PDF!
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Episode 7: On Death and Dying
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In this episode we will be learning from Dr. Dizon and Pam Jackson on their experiences, how they have learned to support and care for patients and their families.
Exploring how we can take an emotional, spiritual and holistic approach in planning and preparing end of life.
Host:
Maimah Karmo | 15 Year Breast Cancer Thriver
Guests:
- Dr. Don Dizon | Medical Oncologist
- Pam Jackson | Death Doula
Takeaway:
Download the Dealing with Terminal Diagnosis is Hard PDF!
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Episode 6: Hereditary Breast Cancer & Breaking the Cycle
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This episode looks at the devastating impact of hereditary breast cancer. We have the ability to take a stand, multigenerational cycles of cancer can be broken through genetic testing and learning about family health history.
Evaluating your family health history, getting genetic testing, and working with high-risk specialists can empower you to be proactive and make informed decisions that can change the trajectory of cancer for generations to come. In this episode, we have a special guest who shares how she came about these difficult decisions and how she is advocating for other women to learn about hereditary breast cancer.
Host:
Maimah Karmo | 15 Year Breast Cancer Thriver
Guests:
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Ashley Dedmon – Tigerlily ANGEL Advocate
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Episode 5: Men Get Breast Cancer
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This episode we break apart the myths and stigma that breast cancer only affects women. Men get breast along with other cancers. For many men processing these emotions and learning to communicate, working with your medical team and establishing a support network is uncharted territory. Learning how to navigate the medical system and process a cancer diagnosis is daunting, in this episode, we will hear from two experts and see how they become their own best advocate and are now helping others around them.
Host:
Maimah Karmo | 15 Year Breast Cancer Thriver
Guests:
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Harvey Singer – HIS Breast Cancer
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Alex Harrington
Takeaway:
Download the Supporting Male Breast Cancer Patients & Their Families PDF!
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Episode 4: Engaging With Your Treatment Plan
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Patients are often so overwhelmed with their diagnosis that the idea of taking on more and being an advocate can be a daunting task. However, there is power in taking control and being as engaged as possible in your care plan, as well as patient engagement opportunities with clinical research and clinical trials. In this episode, we will define, and discuss the benefits of participating in patient engagement, while connecting patient engagement to empowerment and self-advocacy.
Host:
Maimah Karmo | 15 Year Breast Cancer Thriver
Guests:
- Shawn Bethea, Patient Advocate
- Dr. Edith Perez, Chief Medical Officer
Takeaway:
Download the Quality of Life Goal Setting PDF!
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Episode 3: Fear of Recurrence
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This episode focuses on the various and ongoing fears that a cancer diagnosis can bring. We will address the emotions that a patient may experience while living with this fear and the ways they can overcome it, the challenges of survivorship, and how they can use their support network to help them through this process.
Host:
Maimah Karmo | 15 Year Breast Cancer Thriver
Guests:
- Dr. Pat Washington, RN, PhD, OCN, Clinical Nurse Educator, Puma Biotechnology, Inc.
Takeaway:
Download the Assessing your Anxiety and Stress Level PDF!
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Episode 2: Becoming Your Own Best Advocate
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Advocacy is a journey, becoming an empowered self-advocate does not happen overnight, while every step of the way your voice gets stronger and you become more empowered. Advocating on the behalf Health Equity, or on an individual level in your personal health care journey or the journey of others can change health outcomes. In this second episode, we bring together breast cancer patients and a Tigerlily staff to discuss the journey to becoming your own self-advocate.
Host:
Maimah Karmo | 15 Year Breast Cancer Thriver
Guests:
- Izzy Jacques, Tigerlily Foundation, Diversity & Inclusion Program Manager
- Morgan DePaolo, Breast Cancer Thriver | Patient Advocate
Takeaway:
Download the Advocacy 101 PDF!
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Episode 1: Family Health and Genetics
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Learning about your family history can be a tough, and often a sensitive topic to bring up with your family members. However, it is important to have these conversations and compile this information if at all possible. Knowing and understanding your potential risk factors associated with health conditions taking with your medical team or doctor about family history may qualify you for screenings and tests to monitor your health.
Guests on this panel will discuss the strategies to have these conversations with family, important information you may want to know, as well as the benefits of genomic testing and other prevention measures that can be taken by patients to have the knowledge that they need to address their health decisions.
Host:
Maimah Karmo | 15 Year Breast Cancer Thriver
Guests:
- Dr. Altovise Ewing, PhD | LCGC -Genomic | Health Equity Scientist | Genetic Counselor
- Heidi Floyd, Breast Cancer Survivor | Author | Advocate
Takeaway:
Download the Conversation Starters about Family History PDF!
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SEASON ONE
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Episode 1: From Fearful to Fearless – Getting Educated About Your Cancer
A cancer diagnosis can feel overwhelming. In an instant, you’re thrust into a world that is completely foreign to you, without an anchor and oftentimes without a guide. In this episode, Ines Rodriguez, Breast Cancer Survivor and Clinical Nurse Educator does what she does best – the importance of helping patient understand their treatment options and journey. Ines and Tigerlily Foundation ANGEL advocate Na’Diah Smith, an early-stage breast cancer warrior, and Tori Geib, a metastatic breast cancer (mBC) advocate share challenges they experienced, what helped them to better understand their diagnosis and “right for me” treatment options. We are also joined by Patient Mentor, Edwina Lantigua, who shares her experiences working with young women diagnosed with breast cancer. Patients need reliable treatment information and research updates from sources they trust. This episode helps to educate, inspire and build community, so no one thinks they’re alone.
Host:
Maimah Karmo – Breast Cancer Survivor & Founder, Tigerlily Foundation
Guests:
- Ines Rodriguez, RN Breast Cancer Survivor & Clinical Nurse Educator, Puma Biotechnology
- Edwina Lantingua, Patient Mentor, Puma Biotechnology
- Na’Diah Smith, Early Breast Cancer Survivor and Tigerlily ANGEL advocate
- Tori Gieb, Metastatic Breast Cancer Survivor and Tigerlily Advocate
Takeaway:
We are excited to provide our community with an early breast cancer (eBC) planning guide, empowering patients to become their own best advocates about their health.
Early Breast Cancer (eBC) Planning Guide (PDF)
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Episode 2: Know Your Body/Know Your Patient
In this episode of Tigerlily’s BREATHE Tv, we talk with ANGEL Advocate Temi Omaghomi and Surgical Oncologist, Dr. Lori Wilson, about the medical challenges and barriers experienced by Black women. Join Dr. Lori Wilson along with our BREATHE special guests to learn important insights on the unique needs of Black women and the importance of providing equitable healthcare and support – including ensuring that all patients feel comfortable with having supportive dialogue with their doctors.
Patients perspective:
- Feeling comfortable talking to your healthcare provider
- How to communicate with your healthcare provider about treatment options
- How to be actively involved in your treatment choices
- Understanding a second opinion and how to get one
Medical professionals:
- The unique needs of Black women
- How to best support the medical needs of women of color
- How to provide emotional support and psychosocial support to patients
- How to have culturally appropriate and “right for you” conversations with patients of color, to better understand their needs, and provide them with information about their health and ways to eliminate barriers
Host:
Maimah Karmo, Breast Cancer Survivor & Founder, Tigerlily Foundation
Guests:
- Dr. Lori Wilson, Metastatic Breast Cancer Thriver & Associate Professor Howard University College of Medicine; Chief, Surgical Oncology
- Temi Omaghomi, Early Breast Cancer Survivor & Tigerlily ANGEL Advocate
Takeaway:
We are excited to provide our community with a downloadable handout on “Questions to Ask Your Doctor” (PDF), for both early stage and metastatic breast cancer patients, to guide them in their healthcare journey and a “Tele-Health Tip Sheet for Healthcare Providers” (PDF), to guide them to be compassionate providers and see their patients not only as patients but as people.
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Episode 3: Navigating Treatments and the Plan of Care
Episode 3 of BREATHE Tv focuses on discussing your treatment plan and the plan of care supporting your unique needs as a breast cancer patient. In this episode, we dive into the side effects of treatments and ways to work through them. We also discuss the fear of recurrence and metastatic breast cancer. We also talk about the importance of clinical trials, fears around medical mistrust within the Black community, what to know and how to get engaged.
Host:
Maimah Karmo – Breast Cancer Survivor & Founder, Tigerlily Foundation
Guests:
- Shonte Drakeford – Tigerlily MBC ANGEL Advocate, Nurse Navigator
- Sonya Gallaway, Nurse Practitioner, Medical Science Liaison, Puma Biotechnology
- Aliya Whipple, Breast Cancer & Tigerlily ANGEL Advocate
Takeaway:
We are excited to provide our community with a “BREATHE: Information to Compile About Yourself Before Your Appointment” to help patients navigate treatments.
Personal information to compile and complete before your appointment (PDF)
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Episode 4: Time for Transformation
Cancer takes an emotional and mental toll on you, your family and caregivers, and this can have lasting impact. In the final episode of BREATHE Tv, Season 1, Tigerlily ANGEL advocate Patricia Fox (eBC) advocate, Tigerlily ANGEL advocate (eBC), Tajuna Bradley (Nurse Practitioner), Esther Boykin (Licensed Therapist) and Bruce Vanhorn, Life Coach and Tigerlily Chief Transformational Officer talk about surviving and thriving during and after cancer. We also dig into the impact cancer has on mental and emotional health, anxiety, depression, stress and post-traumatic stress disorder. Patients learn where and how to get the help they need. This episode focuses on a holistic approaches, opening up and transforming through the trauma of one’s diagnosis.
Host:
Maimah Karmo, Breast Cancer Survivor & Founder, Tigerlily Foundation
Guests:
- Esther Boykin, Licensed Therapist
- Bruce Vanhorn, Chief Transformational Officer, Tigerlily Foundation
- Tajuna Bradley, Nurse Practitioner, Georgia Cancer Specialists
- Tameika Powell, MBC Disparities Tigerlily ANGEL Advocate
- Patricia Fox, Early Breast Cancer Survivor & Tigerlily ANGEL Advocate
Takeaway:
We are excited to provide our community with a BREATHE Empowerment Worksheet to help you transform and visualize a healthy future.
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BREATHE Tv has been brought to you in collaboration with:
